JDRF Walk 2011

Well, mother nature reared her ugly, untimely head and sent tornado warnings to the area so the JDRF walk had to be cancelled. We were so anxious for the day and when they cancelled at 5:30 that morning, we were disappointed to say the least.  I know, its just a walk.  But it had so much more meaning for us.  Everyone there had a connection to the experience we have been dealing with. Everyone there new of the frustration, sadness and hope. Our own little cult. A celebration of people coming together who were ready to find a cure for our children.

So I had myself a little pity party then realized that all those people had already come together for us!  People who donated, designed our video, made our t-shirts, made cakes and bread and donated all the proceeds, forwarded our video, sent us notes, traveled to be here, took time out of their Saturday to walk with us, those who wanted to be here and those that take care of Addy at school...just to name a few.  We have definitely been blessed. We couldn't do it without all of you.

So Bubba and Bunny's Brigade didn't walk. But we did so much more.
Not to mention that we raised

***************$5,500***************

A nice little chunk of change!

So what we hope... that we don't have to walk next year. Because that would mean, we have a cure!

Some of our team met up for breakfast so we could still celebrate and take some photos. Thank you!

Oh, and Mother Nature..That was a dirty trick.  The day turned out to be a beautiful one.

One Year Looking Back

Its hard to believe its been a year.

One year of 2 a.m. blood sugar checks

One year of counting carbs

One year of finger pricks

One year of a pit in our stomach

One year of wishing for a cure

One year of glucose tablets, insulin, needles, lancets, insets, alcohol pads, glucagons, emergency packs

One year of bravery more than I knew possible

One year of people reaching out to us

One year of appreciating life so much more

One year of being taught by a 3 (now 4) year old to accept life, go with the flow and never forget to giggle.

HAPPY ONE YEAR DIAGNOSIS ADELINE!

Quick Change

Monday's just got a little busier.  On top of gymnastics, Addy had her first soccer practice tonight. So we got home from gymnastics and did a quick change from leotards to shin guards.  She was so excited about going but when she got there she seemed a little shy about everything. The normal wild Bubba was quite reserved and timid.  So we did a quick sugar check to make sure she was at her game # and off she went, slowly. Painfully slowly.  The team practiced shooting, dribbling, passing and not using their hands.  That seemed to be the hardest for Addy. Not using her hands still hasn't registered.  But, I need to remember she's only four and she will get faster and the hang of it as she practices. I think tonight was the unknown to her.  Hopefully next week she will go in there as her crazy Bubba self and throw caution to the wind!

Grrrrr

Sugar Check

Addy's Bud Emelia

Things I Don't Like...

Evelyn does a lot of writing.  I've yet to read half of her notes, stories or letters but I came across this list that I thought was too cute to keep to ourself.

A list of things I don't like...

that I don't have any pets

most princesses

green grapes

Addy's mean side

stupid red sauce

tight things 

snakes

annoying bugs

celery

Lunchables applesauce

reading, it is the worst homework I have

spiders, alligators

being in a car seat 

bad smells

homework

some cheese like cheddar cheese

going to bed early

getting up to go to school early

wounds

hick-ups

groan-up TV shows all except Ellen

leaving playdates

peas

chunks in mashed potatoes

corn

spanish because its boring

peppers

slow computers

long car rides to vacation

the cold

diabetes, diabetes

more diabetes

more and more seeing Addy cry about it

DIABETES

spicy....too hot...itchy!

And lot's of more diabetes!

The most thing I hate is Diabetes!

Getting really sick. 

Missing Friday's

Monday's or Tuesday's

Stinging in my eye

And most of all again Horrible Bad Diabetes

Addys Diabetes Walk 2011 Video

Walk For A Cure

April 16, 2011

Charlotte, NC

Please help! Donate to one of our team members or join our team and walk with us!



(you will need to scroll down to the bottom of this blog and pause my pop-out music to hear the video)

Happy 8th E

The Elf helped.

Things Addy wants you to know

Me: “Addy, what would you tell someone if they asked you about Diabetes?”

Addy:

“Getting shots, if you don’t you get really sick.” You got it Addy!

“You have to prick every time you eat.” Yep!

“You do not smoke when you have diabetes.”  Hmmm?

“Yucky and low, give something to me. When you’re high, you get shots. When just right, you just eat.” Not so much. You still need a shot!

“ I’m fighty when low.” What a great way to describe it!

Today we had Addy’s pump assessment appointment. We focused on three different pumps that would be good for her. I don’t know how we are going to decide. In the meantime, Addy came home with two on her: The Omnipod and the Animas. She has had them on all day and is sleeping with them on now.  The Pod is bulky and attaches right to her. The pro is there is no tubing to deal with.  The Animas is small but it has tubing and the pump itself has to be worn on her pants or in a pouch pack. With both, I can bolus her without having to hold her still and punch in her numbers. All remote.  So, we have a lot to think about before we decide on the “one”. She is stuck with it for five years so we better get it right! Price tag? Starting at $7,000 plus monthly maintenance (insulin, test strips, inserts, etc).

Probably should have taken these pictures before she devoured her dinner. Talk about an extended belly.